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I’m Anna...”New” here
Hi Everyone, My name is Anna and I’m technically new here, I suppose. I’ve been lurking and reading topics since August, but haven’t posted until now. I have most recently seen an Ataxia specialist...
View ArticleN ew Anti -GAD
I am 64 and have worsening ataxia, cognition, and eye irritation due to anti-GAD diagnosed in August 2018. My levels rose from 40 to 164 despite treatment with IVIG and prednisone. I just finished a...
View ArticleIm wonkybut wonderful
Im carrie i was born without ataxia i was a model for a hair salon and as i grew older my ataxia got progressivly worse i have ataxia with isolated vitamin e i was abandoned by my family because of my...
View ArticleI am new on this site
My username is Lilios and I live in the uk. I have been diagnosed with sca6 as I was adopted it was found out through a blood test. What I find difficult to accept is the change in my speech. 25 posts...
View ArticleHi, I’m Karen in CA with sudden onset ataxia
Hey everyone. I’m Karen, a 48 year old mother of 3 (ages 14, 16 and 17), wife of 21 years, special education high school teacher, devout Christian, lover of Keto diet and had been in my best health...
View ArticleWhat to do
How do I begin, I have some form of SCA that doctors have been unable to diagnose so I just live in solitude with my walker. To top it all off I played the stock market and lost most of my savings and...
View ArticleI'm Tiffany from Canada
Hi all I am 37 married from Canada I was disgnosed at the age of nine with something called handy dandy walker which I’m sure is crap. At 16 I was finally diagnosed with Cerebellar Ataxia, they did...
View ArticleHi I’m patsy
Diagnosed with late onset cerebellar ataxia at 71 5 posts - 4 participants Read full topic
View ArticleHi im ollie from uk
Hi, my name is ollie. I’m 40 from Swindon in the uk. I have SCA 11. I currently work as an assistant practitioner for the NHS. would love o hear from others, especially in the uk. ollie 6 posts - 5...
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A long hiatus
Hello…I’m not a new member I joined in 2016; but I’ve neither visited nor posted in about a year. So I thought it would be good for me to give a brief re-cap and update. I’ve been trying to update my...
View ArticleHey guys!
Hi, I am a PhD student living and studying in Glasgow, Scotland, UK. I am originally from Bradford, England. I discovered the forum and found it interesting so joined for some tips/suggestions on...
View ArticleWelcome
Welcome to the site Brandon. Have you seen a doctor? From what you describe, it sounds like a neurological condition has appeared. The symptoms are very much like Ataxia. I would like to suggest that...
View ArticleJmday1222
IM new to this… slow and unfamiliar with site.Im in flordia USA and looking to talk with others ith ataxia 8 posts - 6 participants Read full topic
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Welcoming our newest members (from the last 2 months)
Welcome to our community @Magdalina , @seafret ,@Mojo, @Sfields1, @tdk, @Loulou , @Marie, @singeram , @katebey , @Hopeforataxia818 , @Cali_dreaming , and @Screnshaw !!! I hope you all are finding...
View ArticleHi I'm christine
I was diagnosed with mitochondrial disease last year, diagnosed with sca17 April this year. I’m 72 years old, have 2 daughters, both with mito, but only my eldest with sca17. I’m feeling a bit lost,...
View ArticleHow is Ben’s Friends Different from Social Media and Other Support Sites?
Many people wonder how a Ben’s Friends community is different from social media and other support sites. The Ben’s Friends community for this rare disease is interested in only one thing: you. You as...
View ArticleCommunity Guidelines
This is a Civilized Place for Public Discussion Please treat this discussion forum with the same respect you would a public park. We, too, are a shared community resource — a place to share skills,...
View ArticleIntroduction - Mark
Hi. My name is Mark. I have ARCA1 or SCAR8. I’m in Toronto. I help raise awareness through a non-profit called Hope For Ataxia (www.hopeforataxia.org) I also host a podcast at Season 2, Episode 2 -...
View ArticleHi, I'm Steve
Steve from Colorado here. I’m a father of a boy and a girl. I’m a geologist who has worked primarily in the computer industry. I have SCA II. I used to be quite active… Within the last few years, I...
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