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Channel: Welcome - Living with Ataxia
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I’m Anna...”New” here

Hi Everyone, My name is Anna and I’m technically new here, I suppose. I’ve been lurking and reading topics since August, but haven’t posted until now. I have most recently seen an Ataxia specialist...

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N ew Anti -GAD

I am 64 and have worsening ataxia, cognition, and eye irritation due to anti-GAD diagnosed in August 2018. My levels rose from 40 to 164 despite treatment with IVIG and prednisone. I just finished a...

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Im wonkybut wonderful

Im carrie i was born without ataxia i was a model for a hair salon and as i grew older my ataxia got progressivly worse i have ataxia with isolated vitamin e i was abandoned by my family because of my...

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I am new on this site

My username is Lilios and I live in the uk. I have been diagnosed with sca6 as I was adopted it was found out through a blood test. What I find difficult to accept is the change in my speech. 25 posts...

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Creating a New Account

5 posts - 3 participants Read full topic

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Hi, I’m Karen in CA with sudden onset ataxia

Hey everyone. I’m Karen, a 48 year old mother of 3 (ages 14, 16 and 17), wife of 21 years, special education high school teacher, devout Christian, lover of Keto diet and had been in my best health...

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What to do

How do I begin, I have some form of SCA that doctors have been unable to diagnose so I just live in solitude with my walker. To top it all off I played the stock market and lost most of my savings and...

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I'm Tiffany from Canada

Hi all I am 37 married from Canada I was disgnosed at the age of nine with something called handy dandy walker which I’m sure is crap. At 16 I was finally diagnosed with Cerebellar Ataxia, they did...

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Hi I’m patsy

Diagnosed with late onset cerebellar ataxia at 71 5 posts - 4 participants Read full topic

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Hi im ollie from uk

Hi, my name is ollie. I’m 40 from Swindon in the uk. I have SCA 11. I currently work as an assistant practitioner for the NHS. would love o hear from others, especially in the uk. ollie 6 posts - 5...

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A long hiatus

Hello…I’m not a new member I joined in 2016; but I’ve neither visited nor posted in about a year. So I thought it would be good for me to give a brief re-cap and update. I’ve been trying to update my...

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Hey guys!

Hi, I am a PhD student living and studying in Glasgow, Scotland, UK. I am originally from Bradford, England. I discovered the forum and found it interesting so joined for some tips/suggestions on...

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Welcome

Welcome to the site Brandon. Have you seen a doctor? From what you describe, it sounds like a neurological condition has appeared. The symptoms are very much like Ataxia. I would like to suggest that...

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Jmday1222

IM new to this… slow and unfamiliar with site.Im in flordia USA and looking to talk with others ith ataxia 8 posts - 6 participants Read full topic

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Welcoming our newest members (from the last 2 months)

Welcome to our community @Magdalina , @seafret ,@Mojo, @Sfields1, @tdk, @Loulou , @Marie, @singeram , @katebey , @Hopeforataxia818 , @Cali_dreaming , and @Screnshaw !!! I hope you all are finding...

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Hi I'm christine

I was diagnosed with mitochondrial disease last year, diagnosed with sca17 April this year. I’m 72 years old, have 2 daughters, both with mito, but only my eldest with sca17. I’m feeling a bit lost,...

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How is Ben’s Friends Different from Social Media and Other Support Sites?

Many people wonder how a Ben’s Friends community is different from social media and other support sites. The Ben’s Friends community for this rare disease is interested in only one thing: you. You as...

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Community Guidelines

This is a Civilized Place for Public Discussion Please treat this discussion forum with the same respect you would a public park. We, too, are a shared community resource — a place to share skills,...

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Introduction - Mark

Hi. My name is Mark. I have ARCA1 or SCAR8. I’m in Toronto. I help raise awareness through a non-profit called Hope For Ataxia (www.hopeforataxia.org) I also host a podcast at Season 2, Episode 2 -...

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Hi, I'm Steve

Steve from Colorado here. I’m a father of a boy and a girl. I’m a geologist who has worked primarily in the computer industry. I have SCA II. I used to be quite active… Within the last few years, I...

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